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What Is It Like Going Blind And Deaf? A conversation about Usher Syndrome
December 12, 2022 @ 5:00 pm - 8:00 pm EST
The Usher Syndrome Society is hosting a free public event called This Is USH, an evening of conversation from 5:00 pm -7:00 pm at the Joseph B. Martin Conference Center at Harvard Medical School.
This event is open to researchers, students, physicians, biotech, and industry professionals, members of the USH community, and all interested persons to learn more about what it means to go both deaf and blind.
The Usher Syndrome Society is a non-profit organization that uses storytelling and educational events to raise awareness and funds for treatments and a cure for Usher syndrome. USH is a progressive genetic condition affecting the retina and inner ear, leading to combined vision and hearing loss, and often balance issues in approximately 400,000 people worldwide. Currently, only 1% of the Usher syndrome population has been identified.
Researchers the department of Otolaryngology at Boston Children’s Hospital and Harvard Medical School will be in attendance as well, as there is a private presentation for research groups beforehand.